{"id":5778,"date":"2017-07-26T16:39:08","date_gmt":"2017-07-26T20:39:08","guid":{"rendered":"http:\/\/sciencemediacentre.ca\/site\/?p=5778"},"modified":"2017-07-26T16:39:08","modified_gmt":"2017-07-26T20:39:08","slug":"health-law-experts-call-for-better-policy-around-biobanks","status":"publish","type":"post","link":"http:\/\/sciencemediacentre.ca\/site\/health-law-experts-call-for-better-policy-around-biobanks\/","title":{"rendered":"Health law experts call for better policy around biobanks <img src=\"http:\/\/sciencemediacentre.ca\/site\/wp-content\/uploads\/2014\/01\/canada_flag_icon_small.gif\">"},"content":{"rendered":"<div id=\"attachment_5779\" style=\"width: 778px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-5779\" class=\"size-full wp-image-5779\" src=\"http:\/\/sciencemediacentre.ca\/site\/wp-content\/uploads\/2017\/07\/biobank1.jpg\" alt=\"Biobanks are going to great lengths to gather human tissues, but there are still questions over whether the consent process is adequate. (Sean Caulfield *Virus #2*, silkscreen and digital on drafting film and paper, 24)\" width=\"768\" height=\"433\" srcset=\"http:\/\/sciencemediacentre.ca\/site\/wp-content\/uploads\/2017\/07\/biobank1.jpg 768w, http:\/\/sciencemediacentre.ca\/site\/wp-content\/uploads\/2017\/07\/biobank1-300x169.jpg 300w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><p id=\"caption-attachment-5779\" class=\"wp-caption-text\">Biobanks are going to great lengths to gather human tissues, but there are still questions over whether the consent process is adequate.<br \/><em>(Sean Caulfield *Virus #2*, silkscreen and digital on drafting film and paper, 24)<\/em><\/p><\/div>\n<p>The international health community has seen a lot of progress in the collection\u00a0and storage of\u00a0health data and tissue samples, but there is still work to be done regarding consent and ownership rights. Health law researchers say that current biorepository structures such as UK Biobank and the US Precision Medicine Initiative, which have been proliferating over the past decade, don&#8217;t\u00a0have the\u00a0proper policy required\u00a0to support them. Authors point out the existing disagreements about best ways to obtain consent, as well as the extent of ownership rights of participants over donated samples and health information.<\/p>\n<p><strong>Authors:<\/strong><\/p>\n<p>Timothy Caulfield , Blake Murdoch<\/p>\n<p><strong>Corresponding author:<\/strong><\/p>\n<p>Timothy Caulfield, University of Alberta, Edmonton, AB, Email:\u00a0<a href=\"mailto:caulfield@ualberta.ca\" target=\"_blank\">caulfield@ualberta.ca<\/a><\/p>\n<p><a href=\"http:\/\/journals.plos.org\/plosbiology\/article?id=10.1371\/journal.pbio.2002654\" target=\"_blank\">Original paper <\/a>published in <em>PLOS Biology<\/em> on July 25, 2017.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The international health community has seen a lot of progress in the collection\u00a0and storage of\u00a0health data and tissue samples, but there is still work to be done regarding consent and ownership rights. Health law researchers say that current biorepository structures such as UK Biobank and the US Precision Medicine Initiative, which have been proliferating over [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5779,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[25],"tags":[3099,3097,3098,3100],"class_list":["post-5778","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-paper-of-interest","tag-biobank","tag-bioethics","tag-biorepository","tag-health-law"],"jetpack_featured_media_url":"http:\/\/sciencemediacentre.ca\/site\/wp-content\/uploads\/2017\/07\/biobank1.jpg","jetpack_shortlink":"https:\/\/wp.me\/p4DqbN-1vc","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/posts\/5778","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/comments?post=5778"}],"version-history":[{"count":1,"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/posts\/5778\/revisions"}],"predecessor-version":[{"id":5780,"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/posts\/5778\/revisions\/5780"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/media\/5779"}],"wp:attachment":[{"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/media?parent=5778"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/categories?post=5778"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/sciencemediacentre.ca\/site\/wp-json\/wp\/v2\/tags?post=5778"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}